- Inducted:
- 2022
- Category:
- Local Champion
Twenty years ago, Kris Pierce gave birth to her son Will, who has a life-threatening genetic disorder. Since then Kris Pierce has been involved in advocacy for those with disability and rare diseases locally, nationally and internationally.
Kris has been a consumer advisor at The Royal Children’s Hospital since 2016 and is currently the co-chair of the Community Advisory Committee. Internationally, Kris is a member and chair of the rare disease leadership group, Global Genes. Nationally, Kris is a consumer advocate working with research groups including Child Unlimited ensuring the consumer's voice is an integral part of research and service provision.
In 2022, Kris organised the inaugural Rare Disease Day function at Parliament House Victoria to highlight the impact of rare disease in the Victorian community. As president and a board member of the Sandringham District Netball Association from 2016-2021, Kris has helped raise $20 million to build a regional netball centre for the bayside area and co-founded netball for all abilities in her community.
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